Why my diagnosis is not a secret
To disclose or not to disclose? After they’ve heard, “You have young-onset Parkinson’s disease,” many people wonder: Should I tell my employer? What do I say to friends and family? There isn’t one...
Hikers with Parkinson’s live large
Pass to Pass hikes kick into high gear July 18! People with Parkinson’s are hiking approximately 30 miles over six days with help from support hikers and pack llamas. I am not hiking...
The magic question for overcoming apathy
Many people with Parkinson’s disease experience apathy – a lack of interest, enthusiasm, or concern. I can waste an entire day letting apathy sit in the driver’s seat. Bills need to be paid?...
Strategies and silver linings
I am finally sharing the recording of my keynote address from the University of Maryland Medical Center’s Within Our Reach virtual Parkinson’s Symposium. In the video below, they introduce me at about 20:30...
Take a minute for yourself
“I don’t have time for self-care.” It’s more accurate to say, “I am not choosing to make self-care a priority.” Few of us have a lot of hours or dollars to spend on...
Events to know about
Virtual Parkinson's Symposium Oct. 1 I'm the keynote speaker for the University of Maryland Medical Center's virtual Parkinson's Symposium Oct. 1, 9 a.m.-1 p.m. ET. The event theme is Within Our Reach. "Within...
What is a superhero?
I was moved to tears recently. That is not an every day occurrence. For the last year, I have participated in a Parkinson’s disease research cohort titled Day One: PD Superheroes. Brilliantly led...
The importance of community
The restrictions of the pandemic have affected most of us, and we're not done with them yet. Life can get pretty boring when you’re isolated, and research shows that social connection is as...
Four things I learned in my pain management program
Pain was not my first Parkinson’s symptom, in hindsight, but it is what spurred me to seek medical attention. I’ve since read that 10% of “Parkies” first present with pain. At 37, I...
Five sleep tips from my movement disorder specialist
A lot of us with Parkinson’s disease struggle with fatigue, and sleep problems are also common with Parkinson’s. Obviously if we’re not sleeping enough, that’s not going to help with fatigue. So, I...
- 1
- 2